A story of why writers for hospital drama shows should interview me. 
I had an appointment with the kids to get all of our ears checked from the viral infection.
Things were going well, both kids were pink ear free. I was stressed as my kids had played the- I am still hurting and sick card- when they were obviously over their virus.

It was my turn on the hot seat.

(I did a condition today but put in no products, I didn’t have the energy or time and ran out with wet hair, ugh.) 

My blood pressure was high, I had a migraine, so I wasn’t too concerned. We talked about my GI bleed, the fact I had lost 11 pounds in a short period of time because it was so hard to eat.

We decided to do some blood work just to be on the safe side. My migraine was easing off and I was putting some pain cream on my sore belly and back. I had leaned down and back up but do not remember feeling dizzy.

The next thing I remember is being on the floor, doctors, nurses, and my two children all around me.

I knew it must have been my blood pressure so we took another reading of my BP and Pulse. Sure enough, I had dropped 20 points on top and 10 on the bottom.

But I was dizzy and it was obvious to the doctor that something was wrong.
Pale, clammy, shaking.
My blood pressure kept going up and down.

Suddenly, we are going to take labs turned into: you have to go to the ER and we can’t let you walk the 100 feet to the next building so we are calling an ambulance.
Yes, they seriously called an ambulance for me to go to an ER that I loathe and hate that was RIGHT NEXT DOOR TO THE CLINIC.

I had my kids, I was not stable to walk or drive. If I had walked out I have no doubt I would have had a nice visit from CPS.

So, we sat, my kids and I- we sat in that waiting room for an hour and a half while I tried to track anyone down from church who could come get the kids. Finally, admitting defeat, I called my husband who rushed off to catch two buses back to his park and ride spot so he could get to us. (He works in Portland but takes the bus over the bridge from Vancouver.)

By the time the ambulance showed up, I was feeling fine. My pressure was still going up and down, but I could have made it home just fine- if they had let me.

The ER doctor left a lot to be desired. He told me he was going to do a groin blood draw.
I refused.
He told me I had no need for an IV.
I requested he give me a bag to see if it stabilized my blood pressure.
As an ultrasound was the only way he was going to get his ten vials of blood he agreed. Smart man, he was not going near my groin for a blood draw.

They got me in one stick and all their blood. They took enough to lower my BP again.

He refused me nausea medication.
I sat and watched my endo belly grow and my pain increase as the bag of fluids ran into me and cramped up my gut.

I NEVER asked for pain medication. He, never even asked why my pain was at an 8 when the nurse demanded a number.
He never checked me for a concussion even though I hit my head. No imaging was done because my labs came back fine.

I asked once more before they yanked the IV for the only nausea medication I can have, which he refused and was discharged because- as I had told the doctors and nurses- I was not bleeding out.

It was a simple case of my blood pressure doing its song and dance that it likes to do when I am in pain and dehydrated.
Dehydrated for my body that is, my labs were perfect, but my body thinks it is dying of thirst. That is sjogrens syndrome. You drink water all day and it just seems to disappear on you.

It was another awesome example of why I despise and detest St Johns ER in Longview Washington.

If I could sign a DNR to never be taken there again I would.

I have had a lot of crappy hospitals over the last twenty years of chronic illness. This one takes the cake for the worst one yet.

I even despise nurses there. I LOVE nurses. Practically every Doctor who works there is rude, unhelpful, mean, and dangerous.

I had a doctor give me 60 Toridal after I told him that I had already taken three naproxen that day. He assured me it was safe. I have a GI Bleed. It wasn’t. My GI Doctor was livid.
(This was the doctor who had me in tears for five hours and refused to do anything to help with pain or nausea besides the Toridal I should NOT HAVE BEEN GIVEN.)

Today left me very angry. I should be able to refuse being treated at an Emergency Room I do not feel safe in. I shouldn’t be held captive in my doctor’s office just because I fainted. Truthfully, I faint a few times a week from my blood pressure being unstable. Usually, I am able to lay down as I faint so it’s not a big deal.

I lived three blocks away. Let me walk home if you are so afraid of me driving.

This is just another stern warning to anyone. Never, EVER, faint in a hospital. It never ends well for you.

Now I have a nice swollen endo belly, a sore head, and am even more ticked off at the utter lack of CARE given at this ER.

If you live in Longview Washington and you can- drive to Salmon Creek or any other hospital in Vancouver. Your life might depend on it because even if they find something at St. Johns, they have NO SPECIALISTS ON CALL.

Oh, and as the cherry on the cake of this absolutely fabulous day. My blender died.
So no dinner for me as I am really only keeping sips of protein shakes down with sips of water. Week two of my gut being a total tool hasn’t been fun.

Soonest GI can get me in to do an upper and lower scan is 10-31: unless I really do become anaemic I suppose.

Going to try and get some sleep before something else goes pear-shaped.


Register to Vote!


As a young child hearing this speech, I remember wondering what I could possibly do for my country? Now as an adult I know what every citizen can do for this country.


I just started the process of making sure I can vote in my new state. As soon as my kids are no longer home sick from school I will be heading to the DMV to get my new Washington State licence. I made sure to update my information so that I am voting in my new county and state.

It was simple and easy and something we ALL need to do. Blue, Red, Green, Purple, I don’t care what party you are. Get out and make your voice heard.


Register to vote today! CLICK HERE

There is nothing more important than exercising your democratic right to vote.
It started with a tea party.

It ended with a new country, Bill of Rights, government, Constitution, and a democracy.


But not everyone had the right to vote. Women did not earn that right until 1918

Then there were the Jim Crow laws that needed to be abolished. There are people still alive today who stood up for what was right, the ability for any citizen to vote no matter the color of their skin was.


Never forget the men, women, and even children who laid down their lives for your right to fill out that piece of paper.

If you owe anything to your country, it is registering and voting in every election. Local, national, every election. Get that sticker. Make your voice heard.






A lesson in Grace

At my doctor’s last doctors appointment, I was told something that horrified me.

The triage nurses I was speaking with found me aggressive and rude and that I needed to reign in my frustration, as valid as it was, and be mindful of my tone.

My doctor said she defended me, that she could tell I was in serious pain because she knew me. But, even now, with her, I was aggressive and frustrated. If she didn’t know me so well she would find me rude too.

I told her I was about to cry. I love and adore nurses. To hear that they felt I was rude to them was embarrassing and horrid.

She said she knew that and that was why we were talking. So we could address it and keep the clinic on my side.

I felt so much shame. In pain, it’s hard to stay graceful and calm. But, she was right, I needed to be more aware of my tone and what I was saying.

I know I am not perfect. But, I always, ALWAYS, try to be kind to nurses.

I am praying this is fixable.

Embarrassed but determined to make it right.


spoonie tailz

Ugh, ED story.

As soon as the bronchitis cleared up all hell broke lose in with my GI bleed. And I mean hell.

The pain is at an 8 or 9 and even a 10. I’m no cryer but I have cried more this week than I can recall.

These doctors just decided to NOT treat me. It was torture.

Endobelly and all.

So we were told to head down to Vancouver and get evaluated.

New hospitals and doctors and nurses terrify me. So, I pushed going off until the hubby made me. I missed a game wkfb a friend. I hate having to cancel plans. Hate. Hate. Hate. It.

However, going to this hospital-Best decision ever.

The hospital was clean, had an amazing triage plan and better still, they are nice. It felt like a better version of Univery of Denver Hospital.

They gave me my will to fight back. After four days at a 7 to a 10 I needed desperately to get my pain under control and rule out major things.

We have no idea what is going on so I got to go home. And I went home at a low 7.

We will figure this out. It just will take some time.



An ED miracle

Last night I cried to an Er doctor not known for his bedside manner or helpfulness with patients. I was there for help as I was very weak and I’ll. I expected him to just say NO and walk out.

Instead he nodded and sat down to explain his concerns. Which were valid. My veins are crap. I can not have a central line. It is too dangerous even to do an EJ (neck IV) with me off of blood thinners due to my GI bleed.

He didn’t want to risk destroying the few deep veins we can access if it wasnt absolutly warranted. And while I felt awful I was not medically critical and in need of fluids.

My reply was, “I agree, I understand that concern; but if I continue with the vomiting and diharea with sjogrens and dont get fluids now- We risk not being able to get fluids in me at all without an EJ.

He thought on that for a long moment and then agreed to check my BP standing, sitting, and lying down. If that showed dehydration I could have fluids.
When my stats didn’t change I was sure he would discharge me.

But he shocked me. He said we could try and I could have fluids, nausea meds, and even some toridal.

The ultra sound machine rolled in and yes!!!

My nurse and I were so happy. We started the meds and then disaster strikes.

Luckily, both meds can be absorbed in my tissue. But, what about the fluids?!?

The IV blew and I was sure the doctor would discharge me. We had tried and failed.

I love my endo tribe on Instagram. Follow them all, they have a meme you need to see for any struggle.

The IV blew and I was sure he would discharge me. We had tried and failed.
I WAS RIGHT. In walked my nurse to remove the bad IV and give me the sad news that there was no one available to re try an IV.

I was prepared to deal with this sad blow gracefully when in walked a miracle. A sweet nurse who was determined I would get fluids.

My prayers were answered. I even got some sleep and was released before midnight.

Last night I witnessed a miracle. The fluids saved the day too. I feel so much better. I’m also keeping down water at home so far this morning.

Rough night for sure but it ended with me thanking my loving Heavenly Father for softening the heart of a doctor and sending a nurse in just in time.



Mission BBQ

The third stop on our Williamsburg adventure.

*Slacker mom is just now updating the post.*

For dinner, we went to Hampton and hit up Mission BBQ

Okay, confession time: I am not a huge BBQ junkie, but this place is amazing. We kind of all shared sides and main dishes and had a ton of fun swapping out BBQ sauces and arguing over which one is best.

I stand by my love for the Memphis Belle.

Dude approved and he is hard to please.

It was also fun to mix and match sides.

It is a unique place, everywhere you look you can find something worth smiling over or studying. Here are just some random pictures of things that caught my interest.

Although I do not have a picture as I was a bit busy, one of the men who cooked my ribs was in a USCG hat. (Some of the workers wore military hats. I am not sure but I think they might be vets) My daughter got a real kick out of that! When you could keep her from trying to play with her baby cousin.

It was a wonderful ending to a wonderful day and a great family dinner.

We give the restaurant five out of five stars.


Ah, to be young in a rain storm!

We had a BBQ for our church this last Saturday at Riverside park (link) and it was wet and wild.

The park looked like a lot of fun and we were in the back under the large pavilion that, thankfully, had a roof.

It has been a long time since rain has ran me off, but it sure did on this day.

Just a drizzle turned into a down pour in seconds, and I was very impressed with how quickly around fifty people packed up and cleared out.

I finally put my raincoat to good use!

Why I wore my chucks and not my rain boots is a mystery that may never be solved.

However, I had some not happy kids that the activity ended just because of some rain!!!

She is not amused.

Bad rain!

Welcome to Washington kid.




Yorktown Battlefied and Cementary

This has been on my bucket list to visit for a very long time. Two wars, two major battles, all fought on one beautiful field.

We didn’t make it before the museum closed. Museum Info
Which also looks to be a part of the Jamestown Settlement area as well.

We followed these signs.


And they led us to the battlefields. Where you could walk around and explore.

Uncle Tom is explaining the battle to the kids. Sorry there is no sound. He makes a great tour guide!

Its amazing, looking at this peaceful beautiful field now, and then to realize. It was covered in blood from not one but two major battles from two wars. One to gain Independence from the British and one to preserve the country the first soldiers on the field died for.

Even after all these years you can still see what looks like battle trenches.

It must have been miserable there. The grass is high and itchy, the ground is hard, so digging in would have been a big job. But the worst is the bugs in that tall grass.

Uncle Tom braved the bugs to show the kiddos the cannons and sights. It was hard going and a bit slippery. Cinderella lost her shoe.

There are lots of what I call information stations.

These were closer to the cementary.

It was a sobering, awe-inspiring, moment in time. Even the children seemed to sense that something important and bigger than them had taken place. We didn’t have to have the ‘reverence’ talk more than once.

It was also startling to realise that men in two wars had died fighting for their country. It was even more startling to realise that most were unnamed.

This man decided to be buried with his men after the war.

There is an entire drive you can do on the Civil War Trails

It is a beautiful drive. Ignore my bad singing.

If you have time I would recommend looking at these hollowed sites.

Sadly, we had hungry kids and it was getting late so we headed off on our next adventure. Finding a restaurant we all agreed on.

But first I needed some Auntie snuggles with my little neice.




That bleed….

Okay, if you don’t want to know about a GI bleed. Stop reading now. I am stuck in the ED waiting room trying to stay awake and decided to finally talk about this taboo subject- unless your a little boy- POOP, stool, crap. Whatever you call it. Mine has blood in it and I had colon cancer in 2012 so that is NOT good.

Here is the background:

September 2016. That’s when my GI bleed came back. I had an appointment for Nov 28th to see my GI doc at the University of Colorado. Yes, that was the soonest he could see me.

Where was I Nov 28th 2016?

Waiting for my open heart surgery.

The GI bleed took a back seat to the life threatening heart tumour, two blood clots on my heart, the hole, infection and clotted port.

*warning medical pictures*

And that was amazing. We removed all these things that could kill me. However, that GI bleed stayed around off and on, being a P.I.T.A.


Then we took me off blood thinners because it was assumed my port caused the two clots on my heart. I did my four months so no reason to continue on the medication. Sadly, we were wrong.

Two pulmonary embolisms in my lungs. Now what? Back on blood thinners. A new kind. That I had a reaction too. So, back to the old stand by warfarin and the start of my having to wear oxygen 24/7

But, that damn GI bleed. It kept showing up. Which is dangerous when you are on blood thinners. Especially one with these side effects:

After passing a Swan Cath Test

And the echo restudy and some scares with hours of bleeding we finally made the tough decision to go off blood thinners until we could figure out the bleed.

So off we went to figure out the GI bleed.

In Nov 2017 we did a pill capsle study (read about this scifi test here) which came back inconclusive and with me Still bleeding off and on; they recommended a colonoscopy.

Um, yeah whatever they saw was not in the lower GI and I can not do twilight anesthesia. I am completely awake and feel everything.

No GI doctor was willing to put me under though.

Because my medical history and current lung conditions made every doctor look at me like a medical malpractice lawsuit waiting to happen.

Then we moved from Denver to small town Washington.

Insurance got messed up and it took till the spring of 2018 to get a good primary care doctor. She is the best, btw.

A GI doc though? Still working on that.

Hello Sept 2018, and I am NOT on blood thinners, and sitting in the ED after having clotted blood in my stool that I was able to get a sample of. We need the sample to show blood in the stool to get the procedure. So, of course, the triage nurse told me to get to the ED to give it to a doctor who can order tests and evaluate me for my pain, vomiting, and GI bleed.

I’ve been here three hours.

I’m exhausted. I have a migraine. I have abdominal pain. I don’t want to BE HERE. The first thing I asked was if the doctors could just look at my chart and take the sample.

Clearly, that answer is a no.

Here I sit. Hoping my sample is still good and preparing myself for them to treat me like trash.

Because they seem to think I enjoy coming here.

No, I would enjoy being asleep right now.

We are starting hour four of my lovely visit tonight. Tramuas and sick babies everywhere. I am not priority. They should have just taken my sample and fast tracked me. They are not going to DO anything to me.

Whatever, I’m tired of being a pin cushion anyways.

I finally at least got into a room.

If they do not send this bag to the lab. Heads are gonna roll.

As always, my ED advice.





Still Learning… a year later.

I find it amazing that I am still learning so much about this site, my new phone, how to upload media, how to schedule it out, link up social platforms- and I am a year into this blog. With each post I get more comfortable and excited as I learn new things.

Today I figured out how to combine small videos into a ‘movies’. I seriously need to start watching more youtube tutorial to find more of these neat tricks.

If anyone has recommendations, please leave them in the comments below.


Okay, I am a technology student. Ha!